How to cope with Corona Virus Lock down with Learning disability
Coping with the effects of lock down imposed by the UK government to reduce the transmission of Corona virus (Covid-19) is hard for those of us who understand the complex rationale. But what about our friends, family, people we care for with a learning disability? This can be very frightening and difficult to understand.
The information from the government was fast moving and constantly changing by the end of March 2020. We had swiftly moved from promoting hand washing to 'Happy Birthday' to social distancing and for the most vulnerable in society socially isolating for at least 12 weeks.
This meant that people were staying at home, working online at home, schools closed and people allowed outside for essential shopping, work (keyworkers) and exercise once a day, staying within the local area, whilst maintaining social distancing.
For those with a learning disability daily routines were disrupted, loss of contact with friends and carers or support workers, reliance and increased stress on family members. By the middle of April the rules for daily exercise were relaxed by the UK Government for those with learning disabilities and Autism to help them and their families cope with the changes in daily routines.
How can I answer questions about Corona Virus?
Be Honest. The situation changes daily and there is often confusing or conflicting information. It is ok to say I don't know. Using simple language, providing reassurance even when you know the information you are providing is frightening and sometimes you just don't have the answers to questions. The illustrator of The Gruffalo ( Axel Scheffer) has produced a free downloadable book explaining corona virus in a language we all understand and reminding us all that this frightening time will end.
Where can I find support and advice?
Many of the charities have been very quick at providing on line resources for families and carers looking after people with learning disabilities during this stressful time. Down's Syndrome Association, National Autistic Society (NAS), Mencap and Learning Disability Wales all have very useful information in their respective resource sections on their website. Please click on the name to be directed to the specific page.
What if my loved one has corona virus?
There is a wide variety of symptoms people experience when they catch corona virus. Most will have very mild symptoms but the majority of people are worried about about catching the virus and needing hospital care. If you think you have corona virus then contact your GP or NHS Direct. The Downs syndrome association have published a personal experience of a young lady requiring hospital care for corona virus. Its great to see Laura making a full recovery.
How can I support my loved one with significant changes to their routine?
With such a sudden change in routine virtually overnight it would be expected that people with learning disabilities became frightened, confused, frustrated and this was reflected in their ability to express their understanding. Maybe having an adverse effect on their behaviours. The Challenging Behaviour foundation have made available resources on supporting your loved one at home and advice during school closures. They also have a telephone helpline for advice if you are struggling.
Many of the charities mentioned already have suggestions for activities within their resource pages. Click on the sparkle logo for their resource pack. Inclusive teach also have activity resources. Although the vast amount of information is focused towards children the resources are worth checking out in case there is anything that interests or helps you or your loved one. This is an unusual time. There is no precedence, no right or wrong. Its about us all feeling our way through and making the best of the situation we are in.
If you or your loved one are struggling then please contact your local Community Learning Disability Team, Care provider or GP. Many care providers are maintaining contact via social media, online activities, classes or social groups to try and maintain a sense of community and prevent feelings of isolation. Check out what your groups are doing. I deliver yoga classes via an online platform for my learning disability groups and its great to see everyone participate in the weekly class as well as welcome new members.
Many social media posts i read say 'don't be hard on yourself', 'these are unprecedented times', 'there is no guide book' and they are right. There is no perfect way of living through this difficult time. In the words of Axel Scheffler and Consultant Professor Graham Medley ' One day this strange time will be over'. 'We did it together'.
Lisa